| Title | How Different are Quality of Life Ratings for People with Dementia Reported by Their Family Caregivers from Those Reported by the Patients Themselves? |
| Publication Type | Journal Article |
| Year of Publication | 2017 |
| Authors | Jacob, L, Han, JWon, Kim, THui, Park, JHyuk, Lee, SBum, Lee, JJae, Ryu, S-H, Kim, S-K, Yoon, JChul, Jhoo, JHyeong, Kim, JLan, Kwak, KPhil, Moon, SWoo, Kim, BJo, Lee, DYoung, Kim, KWoong |
| Journal | J Alzheimers Dis |
| Volume | 55 |
| Issue | 1 |
| Pagination | 259-267 |
| Date Published | 2017 |
| ISSN | 1875-8908 |
| Abstract | BACKGROUND: Measurements of patient quality of life (QoL) play a major role in the management of dementia. OBJECTIVE: We investigated the self-proxy discrepancy of QoL ratings in the elderly and the impact of dementia severity on the discrepancy. METHODS: QoL of 718 patients with dementia and 651 non-demented elderly were rated by themselves and their caregivers (CG) using the Quality of Life-Alzheimer's Disease (QoL-AD). The impact of the rater on the total and item scores of QoL-AD was analyzed using repeated measures ANOVA and differential response patterns between self and proxy were analyzed using differential item functioning (DIF) analysis. RESULTS: Self-rated scores were higher than CG-rated scores in all diagnostic groups. The interaction between rater and diagnostic group was significant in total QoL-AD score and 5 item scores ('memory', 'marriage', 'chores around the house', 'do things for fun', and 'life as a whole'). The strength of the DIF increased with advancing dementia in these items. CONCLUSION: Self-proxy rating discrepancy of QoL was influenced by the presence and severity of dementia only in five items. |
| DOI | 10.3233/JAD-160538 |
| Alternate Journal | J. Alzheimers Dis. |
| PubMed ID | 27662302 |
