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Caregivers
L. Clare, Quinn, C., Jones, I. Rees, and Woods, R. T., “"I Don't Think Of It As An Illness": Illness Representations in Mild to Moderate Dementia.”, J Alzheimers Dis, vol. 51, no. 1, pp. 139-50, 2016.
P. Heßmann, Seeberg, G., Reese, J. Peter, Dams, J., Baum, E., Müller, M. J., Dodel, R., and Balzer-Geldsetzer, M., “Health-Related Quality of Life in Patients with Alzheimer's Disease in Different German Health Care Settings.”, J Alzheimers Dis, vol. 51, no. 2, pp. 545-61, 2016.
T. Eichler, Thyrian, J. René, Hertel, J., Richter, S., Wucherer, D., Michalowsky, B., Teipel, S., Kilimann, I., Dreier, A., and Hoffmann, W., “Unmet Needs of Community-Dwelling Primary Care Patients with Dementia in Germany: Prevalence and Correlates.”, J Alzheimers Dis, vol. 51, no. 3, pp. 847-55, 2016.
O. Godefroy, Bakchine, S., Verny, M., Delabrousse-Mayoux, J. - P., Roussel, M., and Pere, J. - J., “Characteristics of Alzheimer's Disease Patients with Severe Executive Disorders.”, J Alzheimers Dis, vol. 51, no. 3, pp. 815-25, 2016.
C. Reed, Happich, M., Argimon, J. Maria, Haro, J. Maria, Wimo, A., Bruno, G., Dodel, R., Jones, R. W., Vellas, B., and Belger, M., “What Drives Country Differences in Cost of Alzheimer's Disease? An Explanation from Resource Use in the GERAS Study.”, J Alzheimers Dis, vol. 57, no. 3, pp. 797-812, 2017.
L. Lim, Zhang, A., Lim, L., Choong, T. - M., Silva, E., Ng, A., and Kandiah, N., “High Caregiver Burden in Young Onset Dementia: What Factors Need Attention?”, J Alzheimers Dis, vol. 61, no. 2, pp. 537-543, 2018.
I. Hallikainen, Hongisto, K., Välimäki, T., Hänninen, T., Martikainen, J., and Koivisto, A. M., “The Progression of Neuropsychiatric Symptoms in Alzheimer's Disease During a Five-Year Follow-Up: Kuopio ALSOVA Study.”, J Alzheimers Dis, vol. 61, no. 4, pp. 1367-1376, 2018.
R. Milne, Bunnik, E., Diaz, A., Richard, E., Badger, S., Gove, D., Georges, J., Fauria, K., Molinuevo, J. - L., Wells, K., Ritchie, C., and Brayne, C., “Perspectives on Communicating Biomarker-Based Assessments of Alzheimer's Disease to Cognitively Healthy Individuals.”, J Alzheimers Dis, vol. 62, no. 2, pp. 487-498, 2018.
A. Tsugawa, Sakurai, S., Inagawa, Y., Hirose, D., Kaneko, Y., Ogawa, Y., Serisawa, S., Takenoshita, N., Sakurai, H., Kanetaka, H., Hirao, K., and Shimizu, S., “Awareness of the COVID-19 Outbreak and Resultant Depressive Tendencies in Patients with Severe Alzheimer's Disease.”, J Alzheimers Dis, vol. 77, no. 2, pp. 539-541, 2020.
P. Alexopoulos, Soldatos, R., Kontogianni, E., Frouda, M., Aligianni, S. Loanna, Skondra, M., Passa, M., Konstantopoulou, G., Stamouli, E., Katirtzoglou, E., Politis, A., Economou, P., Alexaki, M., Siarkos, K., and Politis, A., “COVID-19 Crisis Effects on Caregiver Distress in Neurocognitive Disorder.”, J Alzheimers Dis, vol. 79, no. 1, pp. 459-466, 2021.
J. Hartmann, Roßmeier, C., Riedl, L., Dorn, B., Fischer, J., Slawik, T., Fleischhaker, M., Hartmann, F., Egert-Schwender, S., Kehl, V., Haller, B., Schneider-Schelte, H., Dinkel, A., Jox, R. J., and Diehl-Schmid, J., “Quality of Life in Advanced Dementia with Late Onset, Young Onset, and Very Young Onset.”, J Alzheimers Dis, vol. 80, no. 1, pp. 283-297, 2021.
N. Carcavilla, Pozo, A. Sofía, González, B., Moral-Cuesta, D., Roldán, J. Joaquín, Erice, V., and Remírez, Ade Ganuza, “Needs of Dementia Family Caregivers in Spain During the COVID-19 Pandemic.”, J Alzheimers Dis, vol. 80, no. 2, pp. 533-537, 2021.
M. T. Tam, Dosso, J. A., and Robillard, J. M., “The Impact of a Global Pandemic on People Living with Dementia and Their Care Partners: Analysis of 417 Lived Experience Reports.”, J Alzheimers Dis, vol. 80, no. 2, pp. 865-875, 2021.
W. Vendramini Borelli, Augustin, M. Coutinho, de Oliveira, P. Bell Felix, Reggiani, L. Casagrande, Bandeira-de-Mello, R. Gorga, Schumacher-Schuh, A. Francisco, Chaves, M. Lorena Fag, and Castilhos, R. Machado, “Neuropsychiatric Symptoms in Patients with Dementia Associated with Increased Psychological Distress in Caregivers During the COVID-19 Pandemic.”, J Alzheimers Dis, vol. 80, no. 4, pp. 1705-1712, 2021.
E. Pongan, Dorey, J. - M., Borg, C., Getenet, J. Claude, Bachelet, R., Lourioux, C., Laurent, B., Rey, R., and Rouch, I., “COVID-19: Association Between Increase of Behavioral and Psychological Symptoms of Dementia During Lockdown and Caregivers' Poor Mental Health.”, J Alzheimers Dis, vol. 80, no. 4, pp. 1713-1721, 2021.
S. Ikeda, Mimura, M., Ikeda, M., Wada-Isoe, K., Azuma, M., Inoue, S., and Tomita, K., “Economic Burden of Alzheimer's Disease Dementia in Japan.”, J Alzheimers Dis, vol. 81, no. 1, pp. 309-319, 2021.
L. Viana Dos Azevedo, Calandri, I. Luis, Slachevsky, A., Graviotto, H. Gastón, Vieira, M. Carolina S., de Andrade, C. Bezerra, Rossetti, A. Peredo, Generoso, A. Barroso, Carmona, K. Carvalho, Pinto, L. Aparecida, Sorbara, M., Pinto, A., Guajardo, T., Olavarria, L., Thumala, D., Crivelli, L., Vivas, L., Allegri, R. Francisco, Barbosa, M. Tonidandel, Serrano, C. M., Miranda-Castillo, C., and Caramelli, P., “Impact of Social Isolation on People with Dementia and Their Family Caregivers.”, J Alzheimers Dis, vol. 81, no. 2, pp. 607-617, 2021.
C. Roβmeier, Hartmann, J., Riedl, L., Dorn, B., Fischer, J., Hartmann, F., Egert-Schwender, S., Kehl, V., Schneider-Schelte, H., Jox, R. J., Dinkel, A., and Diehl-Schmid, J., “How Do Persons with Young and Late Onset Dementia Die?”, J Alzheimers Dis, vol. 81, no. 2, pp. 843-852, 2021.
L. Clare, Martyr, A., Gamble, L. D., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Hillman, A., Litherland, R., Quinn, C., Matthews, F. E., and Victor, C., “Impact of COVID-19 on 'Living Well' with Mild-to-Moderate Dementia in the Community: Findings from the IDEAL Cohort.”, J Alzheimers Dis, vol. 85, no. 2, pp. 925-940, 2022.
E. Rotondo, Galimberti, D., Mercurio, M., Giardinieri, G., Forti, S., Vimercati, R., Borracci, V., Fumagalli, G. G., Pietroboni, A. M., Carandini, T., Nobili, A., Scarpini, E., and Arighi, A., “Caregiver Tele-Assistance for Reduction of Emotional Distress During the COVID-19 Pandemic. Psychological Support to Caregivers of People with Dementia: The Italian Experience.”, J Alzheimers Dis, vol. 85, no. 3, pp. 1045-1052, 2022.
R. Benca, W Herring, J., Khandker, R., and Qureshi, Z. P., “Burden of Insomnia and Sleep Disturbances and the Impact of Sleep Treatments in Patients with Probable or Possible Alzheimer's Disease: A Structured Literature Review.”, J Alzheimers Dis, vol. 86, no. 1, pp. 83-109, 2022.
A. Shafir, Ritchie, C. S., Garrett, S. B., Sideman, A. Bernstein, Naasan, G., Merrilees, J., Widera, E., Flint, L., and Harrison, K. L., “"Captive by the Uncertainty"-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic.”, J Alzheimers Dis, vol. 86, no. 2, pp. 787-800, 2022.
L. D. Gamble, Parker, S., Quinn, C., Bennett, H. Q., Martyr, A., Sabatini, S., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Allan, L., Burns, A., Litherland, R., Victor, C., Matthews, F. E., and Clare, L., “A Comparison of Well-Being of Carers of People with Dementia and Their Ability to Manage Before and During the COVID-19 Pandemic: Findings from the IDEAL Study.”, J Alzheimers Dis, vol. 88, no. 2, pp. 679-692, 2022.
A. M. Wessels, Belger, M., Johnston, J. A., Yu, Y., Rentz, D. M., Dowsett, S. A., and Chandler, J., “Demonstration of Clinical Meaningfulness of the Integrated Alzheimer's Disease Rating Scale (iADRS): Association Between Change in iADRS Scores and Patient and Caregiver Health Outcomes.”, J Alzheimers Dis, vol. 88, no. 2, pp. 577-588, 2022.
B. Teichmann, Gkioka, M., Kruse, A., and Tsolaki, M., “Informal Caregivers' Attitude Toward Dementia: The Impact of Dementia Knowledge, Confidence in Dementia Care, and the Behavioral and Psychological Symptoms of the Person with Dementia. A Cross-Sectional Study.”, J Alzheimers Dis, vol. 88, no. 3, pp. 971-984, 2022.

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